From Lived-Experience to Evidence
Community data for local action
People navigating neuro-complex and disability-related care in North Texas have been telling us the same things for years, from fragmented records and missed referrals to appointments that require travel that isn't possible and systems that assume support that doesn't exist.
We believe that pattern is data. And data, done right, can change how local institutions operate.
Through our Community Needs Assessment, we collect structured, consent-first input from disabled and neuro-complex residents and caregivers in Denton County and the broader DFW region. Responses are de-identified, analyzed in aggregate, and translated into plain-language findings that local partners, healthcare stakeholders, and advocates can actually use.
This is not research. It is not clinical. It is your community telling its own story on its own terms in a format decision-makers can act on.
Be Part of The Change:
Your Rights as a Survey Participant
This page explains how we handle information you share with us.
When you complete our Community Needs Assessment, you are participating in a voluntary community listening effort — not a medical study or academic research project. Your responses help us understand access barriers and set priorities. You are never required to answer any question, and you can stop at any time.
Important distinction:
This is a community assessment, not academic or clinical research. It is not regulated by an Institutional Review Board (IRB). Findings will be used to improve InclusiVibe's programs and to advocate for local systems change — not for publication as generalizable medical research. We are not a healthcare provider and nothing here constitutes medical advice.
What information we collect:
We do not ask for your full name, date of birth, insurance information, or medical records. We do not link your responses to any clinical or provider system.
How findings are used:
To produce a public-facing community brief reporting aggregate patterns (no individual data)
To design practical tools –like care continuity checklists and navigation resources –tailored to this community
To inform advocacy with local partners, healthcare stakeholders, and funders
To prioritize InclusiVibe's programming and partnerships
We never sell data. We never share identifiable responses with third parties, employers, insurers, or healthcare providers.
Your rights as a participant:
Questions about your data?
We're a small team and we respond personally.
Lived experience is the data policy has been missing.
Take the assessment. Shape what comes next.