We're done waiting for the system to figure this out

The average patient with our conditions waits 22 years for the right diagnosis. 94% are misdiagnosed with psychiatric conditions along the way. We are building the evidence to change that. Join us before the starting line.

We are looking for our first 100 founding donors. Not because we have all the answers yet. Because we have the right question.

FOUNDING DONOR CAMPAIGN — BE ONE OF THE FIRST 100

What your gift builds

Every amount below funds a specific, measurable piece of what we're building.

Where we are, honestly

InclusiVibe Foundation is pre-launch. Our clinical empathy intervention, ConcertStories, premieres at the EDS Society Gala on July 25, 2026. Our national patient experience survey, Body of Evidence, launches this fall. Our peer support program is running. Our Medical Advisory Board is seated.

We are not asking you to fund a finished program. We are asking you to fund the evidence that will make finished programs possible.

Every dollar raised right now is infrastructure: keeping the research tools running, maintaining the website where patients find us, and getting a foundation built by patients to the starting line. The first 100 donors are the ones who made it real before anyone else believed it would work. We will remember that. So will the data.

What your gift builds

Every amount below funds a specific, measurable piece of what we're building.

  • Funds one survey response in the Body of Evidence study. That's one more patient's experience counted in peer-reviewed research instead of dismissed in a doctor's office.

  • Funds a block of 20 survey responses. That's 20 patients whose years of being told "it's in your head" become data that health systems, insurers, and policymakers can act on. This isn't awareness. It's evidence.

  • Keeps our research infrastructure running for one month. You're not donating to a program. You're making sure the foundation that patients built for themselves can stay standing long enough to prove what we already know.

  • Covers one full month of operational costs: the CRM that tracks our community, the tools our research team uses, and the website where patients find resources they can't find anywhere else.

$5,000+ - Founding partner

You make the Body of Evidence study happen. You fund the premiere of ConcertStories. You underwrite the evidence that changes how an entire category of patients is seen by the medical system. This data does not exist yet. You make it exist. Founding Partners receive direct updates from the Executive Director on research milestones and program outcomes.

Many employers match charitable gifts. Check here to see if your company offers a matching gift program.

It could double your impact at no additional cost to you.

Other ways to give

DAF

Donor-Advised Fund

Direct a grant from your Fidelity, Schwab, or Vanguard DAF to InclusiVibe Foundation using EIN 39-4104319.

Peer-to-Peer Fundraising

Create your own fundraising page and share it with your network. Tell people why you're involved. Your story reaches people we never could.

Monthly Giving

Even $10/month gives us predictable revenue to plan against. Monthly donors are the backbone of early-stage organizations.

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Direct Patient Aid

100% of Medical Support gifts go to patient grants.

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Community Led

Led by lived-experience for neuro-complex communities.

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501(c)(3) Qualified

Gifts are tax-deductible to the extent allowed by 2026 law. EIN: 39-4104319