Share Your Story
Share your journey so together we can be seen, heard, and understood.
This is not about inspiration. This is about evidence of the group's advocacy effort.
When you share your story, you're not performing resilience for an audience. You're documenting what the system missed. You're adding your voice to a record that says: this happened. This is real. And it's happening to more of us than anyone acknowledges.
Many of us are high-functioning. We mask. We compensate. We push through pain that would stop most people because we've been told our symptoms aren't severe enough, aren't real enough, or aren't possible. That masking doesn't mean we're fine. It means we've learned to survive a system that refuses to believe us unless we collapse in front of them.
Your story is not a feel-good moment. Your story is proof.
Whether you're a musician who adapted how you play, a dancer whose body changed, a patient who spent years being told it was anxiety, or a creative who lost their ability to do what they love, your experience matters as advocacy, not as content.
We invite you to share your personal story of how complex neuro-connective tissue conditions have impacted your life. You choose how much to share, how you're identified, and how your story may be used in the future.
Share in Memory
Some people in this community fought for answers, found some, and still got sicker. They had people on their side and still ran out of time. They had some care, but it was still not enough.
Their families carry that.
If you lost someone whose story belongs here, we want to hear it. Just to make sure their life is no longer dismissed.
Every story we carry forward is one more reason the next person gets heard sooner, treated sooner, and has a little more time. That's why we do this.
If you'd like to share the story of someone you've lost, we'd be honored to hear from you. Reach out to us at Stories@inclusivibe.org and someone from our team will be in touch.
HOW TO SUBMIT:
Step 1: Tell us your story.
Fill out the Story Submission Form below. Share as much or as little as you're comfortable with. Written, video, audio, and artwork—all formats are welcome.
If you are submitting audio, video, or artwork, you can fill out as much, or as little as you want in the written portion.much or
Step 2: Download and sign the media release.
This form lets you choose exactly how your story is used, where it's shared, and how you're credited. You control whether your name is used, whether your conditions are mentioned, and whether your story can be considered for future projects like our podcast, short film, or ConcertStories program.
Step 3:
Submit the signed Media Release through the following form to also submit any additional images or media
What happens next:
Your story is reviewed by our team. We will never edit your words without your permission. We will never share your story without your signed consent. If your story is selected for public sharing, we will contact you first to confirm you're still comfortable.
Not ready right now? That's okay. You can download the form, think about it, and come back whenever you're ready. We'll be here.
Important: Story submissions are not anonymous by default. You choose whether your story is considered for public sharing and how you want to be identified: full name, first name only, pseudonym, or anonymous. You also choose whether you want to be considered for future advocacy content, including short films or ConcertStories projects. You are never committed to anything beyond what you check on the form.
Consent-first storytelling. Privacy options available. stories@inclusivibe.org. for full privacy & consent page