Who We Are
InclusiVibe Foundation is a disabled-led 501(c)(3) public charity based in Denton, Texas (DFW). We work at the intersection of music and healthcare equity—supporting adaptive artistry, centering consent-first patient storytelling, and building practical education and continuity tools informed by lived experience.
We exist because too many people navigating complex brain–spine symptom journeys face preventable breakdowns: incomplete documentation, stalled escalation, inconsistent referrals, and fragmented follow-through. At the same time, disabled artists are too often excluded when access needs are treated as “extra” instead of normal. We bridge both realities through visibility, integrity, and systems that enable participation.
Who We Serve
We serve people and communities who are most often overlooked, including:
Disabled musicians and artists seeking access, inclusion, and sustainable participation while helping the community in its advocacy
Patients and caregivers navigating complex brain–spine symptom journeys and diagnostic uncertainty
Clinicians, educators, and allies who want lived-experience–informed education without exploitation
WHAT GUIDES US
Our VIBE: Equity • Integrity • Trauma-awareness • Lived-experience leadership • Collaboration
We surface what’s overlooked, design real participation, build safety to stay and contribute, and prioritize those most impacted.
CURRENT FOCUS (PREVIEW)
Our initial focus is the craniocervical and upper cervical care pathway—especially CTD- or injury-associated complexity often discussed as CCI/AAI and related conditions—because these journeys frequently involve long delays, inconsistent escalation, and treatments that often don’t get coverage.
We are not a clinic and do not provide medical advice, diagnosis, or treatment. Our role is education, documentation integrity, continuity support, and consent-forward storytelling.
FROM OUR CO-FOUNDER
“Despite the severity of symptoms, these patients are often neglected, misdiagnosed, or dismissed by medical professionals. Many are labeled with functional neurological disorders, somatization, or anxiety before structural causes are ever investigated. These individuals—many of whom have connective tissue disorders like Ehlers-Danlos syndrome—often report years of medical gaslighting and fragmented care, despite the presence of structural instability or compression confirmed on imaging.”
— Susan Chalela, MPT, Co-Founder
Where We Are Now
We are in the early years of building—with limited funding and a growing community. Right now, we are focused on delivering tangible outputs (storytelling/media, accessible education, and continuity tools), strengthening governance and financial infrastructure, and recruiting board and volunteer support to scale responsibly.
WAYS TO SUPPORT
Donate
Fuel accessible storytelling and practical tools.
Take the Community Needs Assessment
Help us set priorities for 2026.
(Currently hosted via Google Forms during our transition to NEON.)
Join the Board / Advisory
Support governance, finance, fundraising, and program oversight.
Share Your Story
Consent-forward storytelling. No publication without explicit permission.