In June 2026, the first Complex Neuro-Connective Tissue Conditions Awareness Month was proclaimed by the City of Denton, Texas.
Two cities. Two states.
A growing community.
Now we build on it
Transforming Access in Music and Medicine
WHAT’S NEW
July 2026
InclusiVibe Foundation speaksy at the EDS Society Conference in Dallas, July 25.
Our Medical Advisory Board is being formalized.
We have new board member joined in.
Community Listening Sessions begin this month.
July is Disability Pride Month, and for a foundation built by a quadriplegic patient, that is the context we live in every day.
InclusiVibe Foundation is a disabled-led 501(c)(3) public charity working with people affected by complex neurological and connective tissue conditions.
Through lived-experience leadership, narrative advocacy, community support, education, and creative engagement, we work to make overlooked experiences visible and strengthen the pathways people need to be recognized, supported, and included.
WHAT WE DO
Research
We document what patients experience. Our patient-reported research, developed in collaboration with Indiana University, will be one of the first large-scale efforts to capture diagnostic delay and psychiatric misattribution across this population.
Empathy
InclusiVibe Foundation is developing evidence-based clinical empathy programming at the intersection of music and health. We believe that when providers truly hear what patients live with, care changes. Our approach uses music and patient narrative to measurably improve how providers understand the patient experience.
Community
We build the spaces this community has never had. Peer support. Creative campaigns. An awareness month. A proclamation toolkit. A place where patients, musicians, artists, and advocates can be seen, heard, and believed.
Call to Action Strip
Download the free Proclamation Toolkit: inclusivibe.org/awareness-month
Follow us: @inclusivibefoundation