Our Community Stories

A living story library for belonging, dignity, and shared understanding.

This page is where we share lived experiences from patients, disabled artists, caregivers, and allies—narratives that illuminate the real-world gaps in access, care, and inclusion.

Some posts are personal reflections. Others are interviews, excerpts, or short features connected to our media projects. What they share is a common purpose: to make it harder for people to be dismissed, and easier for communities to understand what support actually looks like.

Every story here is shared with explicit permission. We protect privacy where requested, and our content is for education and advocacy—not medical advice. If you’d like to share your story, you can submit it through our story form and tell us how you want it used.

Privacy & Consent

Caitlin Clonan: Between Fine and Actually Struggling to Survive
InclusiVibe StoryLab Media Team InclusiVibe StoryLab Media Team

Caitlin Clonan: Between Fine and Actually Struggling to Survive

So, I went on what was supposed to be a vacation in Florida. Sounds relaxing, right? Except my body apparently didn’t get the memo. I stopped breathing, went into a coma, and had a dream where Jesus said, “Do not doubt me.” Not exactly the kind of thing you casually note in your medical chart.

The doctors weren’t super helpful in figuring out what actually happened. Most likely, it was my brainstem compression—the part of your brain that controls breathing—plus the fun bonus of seizures. But in true medical comedy-of-errors style, they assumed a young person who stops breathing must have overdosed and actually put “medication overdose” in my chart. Zero proof. Classic.

Meanwhile, my symptoms have been steadily worsening over the last eight years. I started off semi-functional, now I’m mostly not, because for three of those years I spent convincing doctors that my problems had to be from my concussion, only to be met with skepticism and misdiagnosis. Somehow, I survived all of this and even wrote a book about it, which is probably the only sane thing I’ve done in the last decade.

Read More
The Endless Days Get A Light at the End of the Tunnel – My Medical Journey Until Now
patients, community voices InclusiVibe StoryLab Media Team patients, community voices InclusiVibe StoryLab Media Team

The Endless Days Get A Light at the End of the Tunnel – My Medical Journey Until Now

I have had a symptom load that most physicians did not believe until objective evidence on imaging and diagnostic tests finally showed what was wrong, and some are even skeptical enough to refute the objective evidence, claim it is faulty, and that I or the ordering physicians somehow manipulated them

Read More

Our Community Voices Save Lives

Neuro-complex refers to experiences where neurological, connective-tissue, autonomic, and structural factors may overlap, creating complex barriers to stability and support.

Podcasts Presented by InclusiVibe Foundation