A medical illustration of a human skull and cervical spine highlighting nerves and a condition affecting the neck and skull base.

Your Voice Matters

Share your journey so together we can be seen, heard, and understood.

Too many stories of brainstem compression, CCI, AAI, tethered cord, and other complex conditions go unheard. By sharing your experience, you help build visibility, inspire research, and create art that makes the invisible impossible to ignore.

How?

Written Story - Tell your journey in words.

Audio / Video Interview - Record your experience or let us guide you.

Inspire a Music Work - Collaborate with artists to transform your story into a performance.

Short Film or Media Piece - Share visuals of your day-to-day life for storytelling.

A young person wearing a cervical collar and seated on a bus. The person has dark, slightly wet hair and a neutral expression. Text on the image asks, 'Why do I wear a cervical collar?'
Diagram of the human brain and nervous system, highlighting the brain stem, spinal cord, and parts of the brain such as the thalamus, pituitary gland, pons, and medulla oblongata.

#brainstem

#beseen

#beheard

#brainstem #beseen #beheard

A person holding their neck with an animated overlay of a glowing cervical spine.