What We Do

The InclusiVibe™ Foundation combines adaptive music, patient storytelling, and research-informed advocacy to make invisible illnesses seen, heard, and believed — and to help heal medical trauma through the shared human experience.

We focus on:

  • Adaptive Concerts – Showcasing disabled and chronically ill artists, using performance as a platform for visibility, inclusion, and awareness.

  • Storytelling & Media – Creating short films, podcasts, and multimedia projects, collecting writing & video forms of self-narration that amplify patient voices and highlight under-researched conditions.

  • Research Support – Partnering with patients, artists, and healthcare professionals to inform better diagnostics, treatment, and rehabilitation for conditions like CCI, AAI, and Occult Tethered Cord.

  • Community Connection – Building networks where patients, advocates, researchers, and musicians can collaborate for change.

Our work begins with CCI, AAI, and Occult Tethered Cord but extends to all complex, under-researched neurological conditions that leave patients unseen, unheard, and unsupported.

How We Do It

We believe change happens when art, advocacy, and research work together. The InclusiVibe™ Foundation delivers its mission through four interconnected approaches:

  1. Adaptive Performance
    We produce concerts that adapt to the needs of disabled and chronically ill artists, making inclusion not just a goal, but a reality. Performances serve as both artistic expression and a public platform for rare disease awareness.

  2. Patient-Led Storytelling
    Through podcasts, short films, and multimedia projects, we amplify the lived experiences of patients — turning personal stories into tools for education, empathy, and systemic change.

  3. Collaborative Research
    We work with patients, healthcare providers, and academic partners to shape research priorities. By centering lived experience, we aim to improve diagnostics, treatment pathways, and rehabilitation outcomes for under-researched neurological conditions.

  4. Community Building
    We create spaces — both in person and online — where patients, musicians, advocates, and professionals can connect, share resources, and support one another.

Why It Matters

Too many people with complex, under-researched neurological conditions like CCI, AAI, and Occult Tethered Cord are dismissed, misdiagnosed, or left without access to care. The longer these conditions go unseen, the harder it becomes to restore health, independence, and quality of life.

Patients often face medical dismissal — where symptoms are minimized or overlooked — and medical gaslighting, where their experiences are questioned or invalidated. These patterns aren’t about individual blame, but they reveal a systemic problem that demands awareness, discussion, understanding, and change.

When patients lose their mobility, they are often too debilitated to travel, seek treatment, or access life-saving surgery. Some develop severe complications like vascular issues or locked-in episodes that don’t fit textbook definitions — leaving them without answers or support.

The InclusiVibe™ Foundation exists to break this cycle. By combining adaptive music, patient-led storytelling, and research-informed advocacy, we bring visibility, hope, and action to those living in the shadows of medical neglect — and help heal medical trauma through the shared human experience.

Because every story matters. Every voice matters. And no one should face these battles alone.