What We Do

Adaptive Concerts — Accessible concerts led by disabled and chronically ill artists, turning performance into a platform for visibility and inclusion.

Storytelling & Media — Short films, podcasts, and multimedia that amplify patient self‑narration and spotlight under‑researched conditions.

Community Support — Peer networks and workshops where patients, advocates, clinicians, researchers, and musicians collaborate for change.

Research & Relief Fund — Micro‑grants for urgent patient needs, travel to care, and seed funding for research.

How We Do

  • Multimedia Concert Stories

    We pair live performance with 3–4 minute patient films, talkbacks, captions/AD/ASL, and accessible staging—turning concerts into public learning and donor action.

  • Adaptive Performance

    We design rehearsals, tech, and repertoire around disabled and chronically ill artists—paying them fairly and proving that inclusion is a matter of logistics, not luck.

  • Patient-Led Storytelling

    Through the Hidden Diagnoses Impact podcast and short films, patients shape the narrative. We edit for clarity, protect privacy, and turn stories into teachable moments.

  • Patient Support

    Moderated peer groups, resource navigation, and practical skills (breathing, transfers, pacing). Education-only; we help you prepare questions and pathways for your care team.

  • Caregiver Support

    Toolkits, community rooms, and skills sessions for safe assists, pacing, advocacy, and burnout prevention—because better-supported caregivers mean safer patients.

  • Collaborative Research

    Patients, clinicians, and universities co-set priorities. We run surveys and case-pattern studies, co-develop referral/red-flag guides, and pilot CME to improve diagnostics and pathways.

A split-screen image showing two women in video conference. The woman on the left is lying in a hospital bed with a neck brace and oxygen tube, in front of a bright window. The woman on the right is sitting at a desk with a microphone, headphones, and a bookshelf filled with books behind her.
Screenshot of a podcast titled "Hidden Diagnoses" featuring two women. The woman on the left has a nose piercing and is gesturing with her hands, while the woman on the right has headphones and a white shirt, with a music instrument in front of her.

Why It Matters

Too many people with complex, under-researched neurological conditions like CCI, AAI, and Occult Tethered Cord are dismissed, misdiagnosed, or left without access to care. The longer these conditions go unseen, the harder it becomes to restore health, independence, and quality of life.

Patients often face medical dismissal — where symptoms are minimized or overlooked — and medical gaslighting, where their experiences are questioned or invalidated. These patterns aren’t about individual blame, but they reveal a systemic problem that demands awareness, discussion, understanding, and change.

When patients lose their mobility, they are often too debilitated to travel, seek treatment, or access life-saving surgery. Some develop severe complications like vascular issues or locked-in episodes that don’t fit textbook definitions — leaving them without answers or support.

The InclusiVibe™ Foundation exists to break this cycle. By combining adaptive music, patient-led storytelling, and research-informed advocacy, we bring visibility, hope, and action to those living in the shadows of medical neglect — and help heal medical trauma through the shared human experience.

Because every story matters. Every voice matters. And no one should face these battles alone.