InclusiVibe™ Foundation
We advance equity in music and healthcare by supporting adaptive artistry, empowering patient storytelling, and advancing research shaped by lived experience.
We build the Vision with You, for a World where every voice is heard, and every story is seen and valued.
Together, we advance equity in music and healthcare
A Moment That Sparked a Mission
In March 2024, our first encounter in Washington, D.C., revealed a shared passion: a neuro-PT seeing patients every day, and me, a violinist with severe CCI, living it from the inside.
That connection grew into the InclusiVibe Foundation.
Your support keeps it alive — funding care, research, and artistic voices that are too often unheard — directly starts in our fiscal year one.
✨ Join us in transforming access in music and medicine.
Through adaptive artistry, patient storytelling, and research shaped by lived experience, we unite communities to transform access and belonging.
for Brainstem Compression: finally Seen and finally Heard
For too long, brainstem compression has been under-recognized and misunderstood — often leading to misdiagnosis, delayed care, and years of ineffective treatment. Patients may experience dizziness, dysautonomia, fatigue, swallowing difficulties, headaches, and cognitive changes — symptoms that reflect impaired function at the brainstem and upper cervical spine.
While this condition is a key focus of our work, it’s part of a larger pattern we see across complex neurological conditions — including Ehlers-Danlos syndrome (EDS), craniocervical instability (CCI), atlantoaxial instability (AAI), tethered cord syndrome (TCS), and other under-recognized disorders. When symptoms remain invisible, care is delayed, and lives are impacted.
Hello — I’m Amy Wang-Hiller.
I’m the founder of InclusiVibe Foundation. But I am also a professional violinist, violin teacher, and doctoral student at the University of North Texas.
My dissertation focuses on adaptive violin performance practice and inclusive music education — a passion shaped by my own journey as a high-level quadriplegic living with complex neurological conditions.
we cannot wait for change to happen — we must create it.
As artists and musicians, we have the power to shine light on invisible illnesses and unseen disabilities. EDS, CCI, AAI, and TCS are often misunderstood or missed until they become life-altering.
Testing is not standardized.
Research is underfunded.
Treatment is rarely covered.
Complex conditions aren’t rare — they’re rarely recognized.
Let’s change the system: build shared diagnostics, fund prospective studies, and cover evidence-based care—so fewer patients get lost in the gap.
Why does this Mission Matter?
What do we do?
Promote and contribute to research on EDS with CCI, AAI, Tethered Cord Syndrome, and other complex neurological conditions — from developing patient-led data initiatives to supporting interdisciplinary studies that can inform better diagnostics, treatment, and rehabilitation.
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We share patient stories through podcasts, performances, and short films — ensuring lived experiences shape awareness, research, and policy.
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We commission and perform new works with disabled and chronically ill musicians, showcasing how creativity adapts to every body.
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We educate through concerts, media, and community events that highlight conditions like EDS, CCI, AAI, and TCS — bringing visibility to the unseen.
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We contribute to research on complex neurological conditions by developing patient-led data initiatives and supporting interdisciplinary studies that improve diagnostics, treatment, and rehabilitation.
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We connect patients, clinicians, researchers, and artists — building a united movement that transforms access in music and medicine.
Join Us
& Make an Impact
This mission belongs to all of us.
Together, we can bridge the gap between what is known and what is needed — ensuring no one facing these challenges is left without hope, resources, or representation.
We welcome:
Volunteers who want to contribute their time and skills.
Interns seeking hands-on experience in nonprofit operations, advocacy, media, or arts programming.
Advisory board members who can guide our growth and expand our reach.
Experienced nonprofit board members ready to help shape strategy and sustainability.
Let’s connect — as an advocate, volunteer, intern, or professional using your expertise to champion this cause. Your involvement helps transform unseen symptoms into seen and heard realities, driving the change patients urgently need.
InclusiVibe™ Musician Podcast
What began as a space to explore personal development for musicians — building healthy lives with mental clarity and vibrancy — took an unexpected turn when the host faced her disability. Through candid storytelling and career pivots, the podcast now blends artistry with advocacy, offering musicians fresh insights on thriving in the industry while navigating disability in performance and education. It’s a journey of adaptation, creativity, and community for every musician with or without disability to help shape a more inclusive future in music.