News & Updates
We do not always know where this work will take us. What we do know is that we will keep showing up, through advocacy, through awareness, and through the slow, necessary work of building systems that actually serve this community.
This is where we document that. The milestones, the hard weeks, the moments that reminded us why we started, and the ones that pushed us to keep going.
Why We’re Working to Establish Complex Neuro-Connective Tissue Conditions Awareness Month
This is from our founder, Amy Wang-Hiller’s LinkedIn article:
When I first shared what our nonprofit was about and whom we serve, someone commented that conditions like cancer would always get more attention than communities like ours.
I kept thinking about that. And I kept working.
June already recognizes Alzheimer's and Brain Awareness, Migraine and Headache Awareness, and Scoliosis Awareness. But there is nothing for patients whose conditions fall at the intersection of connective tissue disorders and serious neurological injury – conditions like craniocervical instability (CCI), atlantoaxial instability (AAI), brainstem compression, and tethered spinal cord.