Your Rights as a Survey Participant

This page explains how we handle information you share with us.

When you complete our Community Needs Assessment, you are participating in a voluntary community listening effort — not a medical study or academic research project. Your responses help us understand access barriers and set priorities. You are never required to answer any question, and you can stop at any time.

Important distinction:

This is a community assessment, not academic or clinical research. It is not regulated by an Institutional Review Board (IRB). Findings will be used to improve InclusiVibe's programs and to advocate for local systems change — not for publication as generalizable medical research. We are not a healthcare provider and nothing here constitutes medical advice.

What information we collect:

We do not ask for your full name, date of birth, insurance information, or medical records. We do not link your responses to any clinical or provider system.

How findings are used:

• To produce a public-facing community brief reporting aggregate patterns (no individual data)

• To design practical tools –like care continuity checklists and navigation resources –tailored to this community

• To inform advocacy with local partners, healthcare stakeholders, and funders

• To prioritize InclusiVibe's programming and partnerships

We never sell data. We never share identifiable responses with third parties, employers, insurers, or healthcare providers.

Your rights as a participant:

Questions about your data?

We're a small team and we respond personally.