Our Community Stories
A living story library for belonging, dignity, and shared understanding.
This page is where we share lived experiences from patients, disabled artists, caregivers, and allies—narratives that illuminate the real-world gaps in access, care, and inclusion.
Some posts are personal reflections. Others are interviews, excerpts, or short features connected to our media projects. What they share is a common purpose: to make it harder for people to be dismissed, and easier for communities to understand what support actually looks like.
Every story here is shared with explicit permission. We protect privacy where requested, and our content is for education and advocacy—not medical advice. If you’d like to share your story, you can submit it through our story form and tell us how you want it used.
Caitlin Clonan: Between Fine and Actually Struggling to Survive
Meanwhile, my symptoms have been steadily worsening over the last eight years. I started off semi-functional, now I’m mostly not, because for three of those years I spent convincing doctors that my problems had to be from my concussion, only to be met with skepticism and misdiagnosis. Somehow, I survived all of this and even wrote a book about it, which is probably the only sane thing I’ve done in the last decade. …
Our Community Voices Save Lives
Neuro-complex refers to experiences where neurological, connective-tissue, autonomic, and structural factors may overlap, creating complex barriers to stability and support.