Dr. Colin Halverson, PhD, is an Assistant Professor of Medicine at the Indiana University School of Medicine and a faculty investigator at the Indiana University Center for Bioethics. He also serves as Adjunct Assistant Professor of Anthropology at Indiana University, Affiliate Faculty with the Charles Warren Fairbanks Center for Medical Ethics, and Affiliate Research Scientist at the Regenstrief Institute.

Trained as a medical and linguistic anthropologist, Dr. Halverson earned his MA and PhD from the University of Chicago, where he focused on communication in medical genetics, and completed postdoctoral fellowships in clinical and medical ethics at the MacLean Center (University of Chicago) and Vanderbilt University Medical Center.

His research centers on the ethics of genetics, health communication, and the lived experience of rare disease, with a particular focus on hypermobile Ehlers-Danlos syndrome (hEDS) and related disorders. Through ethnographic work with patients and clinicians, Dr. Halverson has examined diagnostic delay, misdiagnosis, clinician-associated trauma, and the “diagnostic odyssey” that many hEDS patients endure, helping to reframe these journeys as structural and ethical problems rather than individual failings.

At InclusiVibe Foundation, Dr. Halverson contributes expertise in bioethics, rare disease research, and patient–clinician communication, helping to ensure that our storytelling, educational tools, and research initiatives are grounded in both rigorous scholarship and the realities of patient experience.