Neurocomplex Peer & Psychosocial Support Circles
A community space for patients, caregivers, and artists living with complex brainstem and spinal conditions.
Scan & Download from Apple App Store
INTRODUCTION:
The Neurocomplex Community App is a digital home for people living with brainstem compression, CCI/AAI, tethered cord, paralysis, and related neuro-complex conditions. Built by InclusiVibe Foundation, the app connects peer support, psychosocial education, and storytelling so you don’t have to navigate this journey alone.
WHO THE APP IS FOR:
Patients
living with neuro-complex and brainstem-related conditions, whether or not you have a clear diagnosis yet
Artists and creatives
navigating adaptive setups, career disruption, and identity shifts due to health.
Caregivers and family members
supporting someone with paralysis, dysautonomia, dystonia, severe fatigue, or complex pain.
Clinicians and allies
who want a window into lived experience and community needs, in a respectful, non-extractive way.
Connect with peers
Join topic-based spaces and threads with others facing similar symptoms, procedures, and day-to-day barriers.
Sign up for Neurocomplex Peer & Psychosocial Support Circles
Reserve a spot in facilitated virtual circles for patients, caregivers, and artists focused on ambiguous loss, appointment prep, documentation, burnout, and adaptive living.
Access curated resources
Find plain-language guides, checklists, and tools related to brainstem/CCI, tethered cord, dystonia, paralysis, and complex diagnostic journeys.
Inside the Neurocomplex Community App, you’ll be able to:
Stay up to date on programs & events
Get updates on ConcertStories performances, podcast episodes, workshops, and advocacy opportunities hosted by InclusiVibe Foundation.
Share lived experience that can shape better care
Optional prompts and feedback forms let you share patterns, questions, and barriers you’re facing. These de-identified insights help inform our education, advocacy, and research briefs.
The app is part of a bigger ecosystem:
-
live and digital performances that pair music with patient storytelling.
-
conversations with patients, clinicians, and researchers about complex and often-missed conditions.
-
plain-language summaries and case-based briefs that translate lived experience and literature into practical tools.
