"In my Head" or Just Rare? - Zebra Exists

Solo Episode
Written By Amy Wang-Hiller

For this episode, I share my medical journey for the last two and half years being absent on my podcast, how I got my diagnosis of Ehlers-Danlos Syndrome and other comorbidities, and what it is like to be a full-time patient advocate for myself. 

I hope this will lead us in a new direction as I will bring more guests who are musicians with disabilities. I want to bring awareness to the music community to see this minority group of equally talented people, what issues we have encountered in terms of accessibilities, inclusivity, and how we manage our disability as each individuals to accommodate our music career. 

Amy Wang-Hiller

Amy Wang-Hiller is a violinist, educator, and disability advocate whose career was reshaped by her own journey with complex neurological conditions, including craniocervical instability (CCI) and Ehlers-Danlos syndrome (EDS). As Founder and Executive Director of the InclusiVibe Foundation, she transforms lived experience into inclusive concerts, research partnerships, and storytelling that bridge healthcare and the arts. Her work unites disabled artists, medical experts, and communities to advance equity, visibility, and systemic change.

http://inclusivibe.org
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