Voices of Chronicles
Every patient’s journey, told in their voices — through music, conversation, and film.
Whether shared in words, music, or moving images, these are the real stories of patients living with complex, often unseen neurological conditions.
Here, you’ll find their voices — raw, unfiltered, and amplified through the lens of art and advocacy.
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In-depth audio or video conversations with patients, clinicians, and advocates. These interviews give space for personal stories, raw reflections, and the details that often get lost in medical charts.
Where you’ll find it:
Listen on our podcast feed or watch recorded interviews right here on the site. -
Live or recorded music performances created in collaboration with patients. Each piece is inspired by their journey and paired with narrative storytelling, so the art becomes part of the advocacy.
Where you’ll find it:
Watch full performance videos or excerpts alongside the patient’s own words. -
3–4 minute short films blending patient narratives with visual storytelling. Perfect for sharing on social media, these films capture key moments — from medical milestones to stage debuts.
Where you’ll find it:
View directly on our site or across our YouTube and social channels. -
Written stories: personal essays documenting patient stories, advocacy updates, and behind-the-scenes moments. Some stand alone as written pieces; others are paired with performances or interviews.
Where you’ll find it:
Read them here in the Chronicles archive — each story with its own dedicated page.
Stories
of CCI, AAI, Tethered Spinal Cord, and More
Stories of CCI, AAI, Tethered Spinal Cord, and More
Amy W.
🎙️Podcast, 🎶 Performance, 🎥 Short Film
Anna M.
🎙️Podcast, 🎶 Performance, 🎥 Short Film
Maria R. —
🎥 Short Film only
Share your story.
Your journey could inspire hope, spark research, or change a policy. By adding your voice to Voices of Chronicles, you make the unseen visible — and the unheard, impossible to ignore.
Make us visible.
Make us audible
Support This Work
Help us Amplify Their Voices
Every patient story we produce — whether as a performance, podcast, or short film — requires time, resources, and care.
Your donation funds the artists, filmmakers, and accessibility services that bring these stories to life and make them available to the world.