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How to Find Yourself - be authentically you - TSM 06 Even though kids bullied me for wearing thick lens glasses and was bad-mouthing that the white princess dress my mom bought me looks like a funeral gown for the deceased...my mom has been the one continuously feeding me positive information about myself. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/1594457179714-TPHDZN0KZG0ZG3THKNSE/IMG_0948.JPG InclusiVibe Musician Podcast - How to Find Yourself - be authentically you - TSM 06 remember came to the U.S. and being told that no one wore skirt dresses unless is special occasion... of course I know that isn't true long ago. https://inclusivibe.org/storylab/musician-podcast/luke-ellard-tsmp-05 monthly 0.5 2025-08-07 https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/1593982804308-7KRDESZ6XUVO53YIZPF5/luke+headshot.jpg InclusiVibe Musician Podcast - Luke Ellard - Be Authentic & Be True to Yourself - TSMP 05 https://inclusivibe.org/storylab/musician-podcast/2020/6/26/release-self-judgment-amp-choose-self-acceptance-tsmp-04 monthly 0.5 2025-08-07 https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/1593199825867-W97DU1A4WESTFDVJUSJQ/DSCN2900.JPG InclusiVibe Musician Podcast - 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Caitlin Clonan: Between Fine and Actually Struggling to Survive the struggle of living with invisible illness and the ways I’ve used art and humor to navigate it. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/d4ced3df-57b2-4353-955d-20413094190c/Brainstem+compression+.jpg Our Community Stories - Caitlin Clonan: Between Fine and Actually Struggling to Survive - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://inclusivibe.org/our-stories/persistent-horrors-survivor monthly 0.5 2026-04-26 https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/e53c0847-7f6b-4c86-9f97-b4516f90de3c/Screenshot+2025-12-24+at+8.06.54%E2%80%AFPM.png Our Community Stories - The Endless Days Get A Light at the End of the Tunnel – My Medical Journey Until Now - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://inclusivibe.org/our-stories/founder-cci-story-to-creativity monthly 0.5 2026-01-16 https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/55e35817-aa3c-464d-af03-5f2f81422a07/Screen+Shot+2022-11-24+at+22.55.09.png Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - I am performing in a changed body—adapted, limited, but still true to the music. Still me. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/f9d9c547-0671-4972-963f-230f1c4eefa6/IMG_9137.png Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - It’s hard to remember how effortless playing felt before paralysis. It’s hard to remember how effortless playing felt before paralysis. Stability didn’t erase disability—it gave me a way back to the instrument. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/80747bdf-7487-4de5-884f-d14198a13515/77262447_170710366285911_r.jpeg Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/d0e2cff8-ffb6-4471-aabc-bfec87b86a01/3.png Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/acaffcc1-bf77-44ca-b5a1-3b3b5ec906f1/IMG_5380.jpg Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - “I played like it was my last—because I didn’t know if the next trigger would leave me with even less movement.” I played as much as I could—until the progression kept taking more. https://inclusivibe.org/our-stories/category/community+voices monthly 0.5 https://inclusivibe.org/our-stories/category/patient monthly 0.5 https://inclusivibe.org/our-stories/category/patients monthly 0.5 https://inclusivibe.org/our-stories/category/Founder%27s+Narratives monthly 0.5 https://inclusivibe.org/our-stories/tag/patient+voice monthly 0.5 https://inclusivibe.org/our-stories/tag/Patient%27s+Voice monthly 0.5 https://inclusivibe.org/our-stories/tag/community+voice monthly 0.5 https://inclusivibe.org/our-stories/tag/EDS monthly 0.5 https://inclusivibe.org/our-stories/tag/CCI monthly 0.5 https://inclusivibe.org/our-stories/tag/ME monthly 0.5 https://inclusivibe.org/our-stories/tag/lived-experience monthly 0.5 https://inclusivibe.org/our-stories/tag/OTC monthly 0.5 https://inclusivibe.org/glossary-page daily 0.75 2026-06-22 https://inclusivibe.org/glossary-page/Blog Post Title One-3zaa9-zlxng-67tfc-9zyde monthly 0.5 2026-06-08 https://inclusivibe.org/glossary-page/blog-post-title-two-t5my5-k4xmd-67jzh-wyh57 monthly 0.5 2025-08-22 https://inclusivibe.org/glossary-page/blog-post-title-three-y3peb-4lwnz-5pkhf-gf2lj monthly 0.5 2025-08-22 https://inclusivibe.org/glossary-page/blog-post-title-four-lr658-tcthp-wf5mw-n53rr monthly 0.5 2025-09-09 https://inclusivibe.org/news daily 0.75 2026-06-27 https://inclusivibe.org/news/inclusivibe-two-cities-proclaimed-complex-neuro-connective-tissue-conditions-awareness-month monthly 0.5 2026-06-27 https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/169a7b6a-fcd9-4f76-bd59-cf3bad6d3805/IMG_6665+2.jpeg News - I Questioned My Decision. Then Two Cities Proclaimed Complex Neuro-Connective Tissue Conditions Awareness Month. - From City of Denton, Texas First annual Complex Neuro-Connective Tissue Conditions Awareness Month. We made history for the spinal manifestations in connective tissue conditions known. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/dc946e3b-5e18-4269-afb0-1853a86c4086/IMG_20260615_165240+2.jpg News - I Questioned My Decision. Then Two Cities Proclaimed Complex Neuro-Connective Tissue Conditions Awareness Month. - Proclamation from Town of Windsor, Colorado. First annual Complex Neuro-Connective Tissue Conditions Awareness Month, second proclamation. As it proves to us, as we demand our recognition, since people currently don’t have a good policy to protect them or a good care pathway to stop their progression, more people will hear us. And our hope will be spread. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/1bcf3b14-e234-4b81-890c-f14d27e7fdfc/1781979417025.png News - I Questioned My Decision. Then Two Cities Proclaimed Complex Neuro-Connective Tissue Conditions Awareness Month. - The poll answers from the Instagram We have 34% still adapting, 16% on pause, and 16% playing differently from the poll results under this #PlayForUs Reel. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/98cf5621-e085-454c-9fc3-6980e255fcfa/1781980583818.png News - I Questioned My Decision. Then Two Cities Proclaimed Complex Neuro-Connective Tissue Conditions Awareness Month. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://video.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/e7b4e421-937b-4f16-9295-c82fc1e3c325/playlist.m3u8 https://video.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/e7b4e421-937b-4f16-9295-c82fc1e3c325/thumbnail News - I Questioned My Decision. Then Two Cities Proclaimed Complex Neuro-Connective Tissue Conditions Awareness Month. Musician, Artist, Performer, Creatives, We play for each other. We create for each other. We lift each other up. We see each other. When I asked our community Where are you in your music journey right now,' 76 people responded. 34% said they still play similarly. 34% are adapting. 16% play differently now. And 16% are on pause. That means two out of three patient musicians in our community have had their ability to create changed by their conditions. That is who #PlayForUs is for. Tag @inclusivibefoundation on Instagram and use #ComplexNeuroConnectiveTissue #PlayForUs https://inclusivibe.org/news/complex-neuro-connective-tissue-condition-awareness-month-initiative monthly 0.5 2026-06-26 https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/dc9b595d-d636-4d87-8f0b-9491192a627f/CNCTCAwareness+Map.png News - Why We’re Working to Establish Complex Neuro-Connective Tissue Conditions Awareness Month - LOCAL ACTION. NATIONAL IMPACT. CALL YOUR LOCAL CITY, COUNTY COMMISSIONERS COURT, WE OFFER YOU A FREE PROCLAMATION TOOLKIT WITH STEP-BY-STEP INSTRUCTIONS. https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/b766a969-23aa-487f-a20c-e3374816db5f/2026+annual+complex+neuro-connective+tissue+condition+awarenss+month-carousel+FINAL+TRANS.png News - Why We’re Working to Establish Complex Neuro-Connective Tissue Conditions Awareness Month - OUR RIBBON And we developed the blue, orange, and purple zebra-stripe ribbon, which represents the daily overlap conditions these patients navigate. Three different styles ribbons: tri-color zebra stripe ribbon for Complex Neuro-Connective Tissue Conditions Blue – neurological / brain and brainstem Orange – spinal cord conditions / tethering Purple – multisystem overlap and coexisting conditions https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/f13e2888-6751-4846-bb0c-91bfaf9e6a21/1779742029001.png News - Why We’re Working to Establish Complex Neuro-Connective Tissue Conditions Awareness Month - Make it stand out We understand that we are complex. We understand how difficult it is to diagnose and treat, but we need more education and awareness in our community, followed by belief from family members and physicians. https://inclusivibe.org/news/why-i-started-and-what-the-last-eight-months-have-been-like monthly 0.5 2026-06-26 https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/f2c7a6e7-44f7-457e-adcf-fb3610a7b12e/Podcast+%28Stickers+%28Circle%29%29.png News - Why I Started, and What the Last Eight Months Have Been Like - Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond "It’s the same mission and vision. I was hoping the physicians would hear us and would advocate for us. I know it's hard with complex conditions. When it's unknown and undiagnosed, but we are still a community of people affected by debilitating symptoms. It's hard to hide your daily reality with a smile, just because we need to survive." — Amy Wang-Hiller, Founder of InclusiVibe Foundation and host of the podcast “Hidden Diagnoses Impact“ https://images.squarespace-cdn.com/content/v1/58f23ae537c581141194b0f7/1767742136639-IQPFCPPQ08QME4JQ92GX/Screenshot+2026-01-06+at+5.28.36%E2%80%AFPM.png News - Why I Started, and What the Last Eight Months Have Been Like - Speaking Up takes Courage, One Community gives Us the Courage. My drive for advocacy back in Mar during the Reeve Summit was no doubt the highest. I know it’s hard. But when it’s with a community, it’s much easier to speak up. And I do believe it takes a community effort. Would we be the ones to save us? 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