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      <image:caption>the struggle of living with invisible illness and the ways I’ve used art and humor to navigate it.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Our Community Stories - The Endless Days Get A Light at the End of the Tunnel – My Medical Journey Until Now - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - I am performing in a changed body—adapted, limited, but still true to the music. Still me.</image:title>
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      <image:title>Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - It’s hard to remember how effortless playing felt before paralysis.</image:title>
      <image:caption>It’s hard to remember how effortless playing felt before paralysis. Stability didn’t erase disability—it gave me a way back to the instrument.</image:caption>
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      <image:title>Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Our Community Stories - From Tethered Spinal Cord to C1 Paralysis and Five Years of Being Told I "didn't add up." - “I played like it was my last—because I didn’t know if the next trigger would leave me with even less movement.”</image:title>
      <image:caption>I played as much as I could—until the progression kept taking more.</image:caption>
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      <image:title>News - Why We’re Working to Establish Complex Neuro-Connective Tissue Conditions Awareness Month - LOCAL ACTION. NATIONAL IMPACT.</image:title>
      <image:caption>CALL YOUR LOCAL CITY, COUNTY COMMISSIONERS COURT, WE OFFER YOU A FREE PROCLAMATION TOOLKIT WITH STEP-BY-STEP INSTRUCTIONS.</image:caption>
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      <image:title>News - Why We’re Working to Establish Complex Neuro-Connective Tissue Conditions Awareness Month - OUR RIBBON</image:title>
      <image:caption>And we developed the blue, orange, and purple zebra-stripe ribbon, which represents the daily overlap conditions these patients navigate. Three different styles ribbons: tri-color zebra stripe ribbon for Complex Neuro-Connective Tissue Conditions  Blue – neurological / brain and brainstem  Orange – spinal cord conditions / tethering  Purple – multisystem overlap and coexisting conditions</image:caption>
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      <image:caption>We understand that we are complex. We understand how difficult it is to diagnose and treat, but we need more education and awareness in our community, followed by belief from family members and physicians.</image:caption>
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      <image:title>News - Why I Started, and What the Last Eight Months Have Been Like - Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond</image:title>
      <image:caption>"It’s the same mission and vision. I was hoping the physicians would hear us and would advocate for us. I know it's hard with complex conditions. When it's unknown and undiagnosed, but we are still a community of people affected by debilitating symptoms. It's hard to hide your daily reality with a smile, just because we need to survive." — Amy Wang-Hiller, Founder of InclusiVibe Foundation and host of the podcast “Hidden Diagnoses Impact“</image:caption>
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      <image:title>News - Why I Started, and What the Last Eight Months Have Been Like - Speaking Up takes Courage, One Community gives Us the Courage.</image:title>
      <image:caption>My drive for advocacy back in Mar during the Reeve Summit was no doubt the highest. I know it’s hard. But when it’s with a community, it’s much easier to speak up. And I do believe it takes a community effort. Would we be the ones to save us? I hope the answer is "Why not?"</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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